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| 2005 Conference:
Keynote & Workshop Sessions |
| Keynote Address - Thursday, April 28, 2005 - 9:00 - 10:15 am |
Anne Juhlmann & Abigail Juhlmann The Giving Tree, Green Eggs and Ham, The Little Engine That Could and many other pieces of children’s literature have a lot to teach us about building a medical home. During this keynote, the presenter's own experiences as a nurse and as a mother of a child with special healthcare needs will be weaved with children’s literature in order to review not only the concept of medical home but also some practical strategies for both families and providers who are interested in building a medical home for the child with special health care needs. Anne Juhlmann, RN, BSN, is the Family Program Coordinator for the SE Regional CSHCN Center, Children's Hospital of Wisconsin. Her daughter, Abigail, will join her in this keynote presentation.
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| Session A - Thursday April 28, 2004 - 10:30 a.m. - Noon |
1. FACILITATED IEP: What is it and How is it Working? The President’s Commission on Excellence in Education recommended using a “facilitated IEP” as a method of early conflict prevention between parents and educators. This session helps participants understand the who, what, when and how of Wisconsin’s new “facilitated IEP” process, and what the data shows about the process. Jan Serak, Executive Co-Director, WI FACETS, Nissan Bar-Lev, Nelsinia Ramos-Rojas 2. Interagency Adventures in Transition to Adulthood This presentation will highlight the IEP process and involving interagency linkages. This hands-on approach will feature topics that include post school outcomes, understanding the interagency players, developing transition county teams, interagency agreements, and collaborating as a team. Linda Berg, CESA #10; Kayla Willison 3. Living With Special Needs Without Getting Lost Looking for help to proceed through the maze of every day life, without getting lost? Learn some ways to get organized! Be validated as the “expert” parent you are! Lynn Halatek 4. Fatherhood/Touchpoints Fathers, come explore T. Berry Brazelton's TouchPoints concept with an experienced facilitator. Learn how you can help your child develop autonomy and sense of self, and lessen the stress of being a parent. Rob Goslin, Red Cliff ECC Fatherhood Program; Touchpoints Site Coordinator 5. The Stories of Our Lives Research shows that caring for a CSHCN often produces stress, illness, depression and anxiety. The practice of reflective writing is a meaningful and consistent technique for families that reduces stress and assists families through the grieving process. Maribeth Fischer, MFA; Abigail Juhlmann 6. Choosing Battles and Battlefields: Parents and Professionals Working Toward Victorious Outcomes for Children and Adolescents with Mental Health Issues - Understanding children’s mental health disorders and coping with them can seem an endless uphill struggle. Learn about preparations on the home front, finding allies, and forming alliances. Nancy Marz, Clinical Consultant, DHFS Bureau of Mental Health and Substance Abuse 7. Storytelling Every family with a CSHCN has a story to tell. How that story is shared will have an impact on the way others view not only that particular family and child, but also all families with CSHCN. This workshop will focus on the art of weaving one’s experiences into a meaningful story that can be told in different ways and in different forums. Anne Juhlmann, RN, BSN, Family Program Coordinator, SE Regional CSHCN Center, Children's Hospital of Wisconsin |
| Session B - Thursday April 29, 2004 1:15 pm - 2:45 pm |
8. Dealing with Hidden Disabilities There are many reasons behind a child’s lack of success in school and life; some may be obvious, and others are “hidden” disabilities. Cynthia Hirsch, Special Education Advocate, Ruth Munro M.S., CCC-SLP 9. Self-Determination: What does it really mean? Join us to hear about how two young adults and their parents learn about self-determination and self-advocacy. What does it really mean for someone to be "self-determined?" Charlotte Price & Chad Murphy Price; Bea Gerbitz & Andrew Gerbitz; Deb Wisniewski 10. Get Involved, Stay Involved This will be an interactive session, so get ready to move around the room, jot down notes and have fun creating an IEP for your school district - a guide for districts on how to meet the "sustaining family involvement" annual goal. Gail Kolvenbach, WI FACETS 11. Inclusive Learning Places for all Young Children: Families, Child Care Professionals, and Specialists Join Forces Learn how childcare professionals, educators, families, and specialists working with young children mutually find ways to integrate special education into childcare programs in a Wisconsin community. Simone DeVore, UW-Whitewater; Karen Russell, Early Childhood Waunakee Prairie Elementary School; Jill Statz, Program Director, Adventures in Learning 12.SmileAbilities This program is designed to bring parents, caregivers and professionals together to gain a better understanding of the oral health needs of children with special health care needs. Our goal is to provide training and resources for parents and caregivers to better provide basic oral health and prevention methods. (2-Part Workshop) Kathleen M. Endres RDH, CDHC NE/SE Regional Oral Health Consultant 13. Coping Skills for Families Experiencing Mental Health Issues There is a range of emotions families experience when a mental health diagnosis is made for a family member, and there is a role for support groups and coping skills. Learn building blocks to promote a healthy lifestyle. Arnetta Thorton; Kristyl Thomas, Parent Liaison 14. Opportunities for Parents to Impact Programs & Policies Participants will become familiar with opportunities to affect, and potentially change policies at the local and state level that impact children with disabilities and their families. Liz Hecht, Waisman Center |
| Session C - Thursday April 29, 2004 - 3:15 pm - 4:45 pm |
15.The IEP as an Advocacy Tool Gain skills in using the IEP to advocate for your child’s needs. Marlea Linse 16. A Look Ahead to the Adult Service System The picture changes when kids leave school. Families of teens are invited to come and learn what to expect from the world of adult services from adult program administrators. Vince Maro. Assistant Area Administrator, OSF; Donna Winnick, DD Program Supervisor, Dane County; Brandon Smith 17. Guardianship and Other Decision-making Options When and why should families with children with disabilities pursue a court-ordered guardianship? Learn about the standards and procedures for a guardianship as well as roles and responsibilities of guardians of the person and guardians of the estate. Betsy Abramson, Clinical Assistant Professor, Director, Elder Law Clinic 18. Introduction to Signed English Discover the differences between common sign languages and learn some Signed English. This session will introduce the alphabet and signs for terms that are appropriate for use with toddlers, using Signed English. Kathy Pluer 19. Reflections: A Retreat Relax a little, share with others, have some fun, and use Faith for strength in our daily lives. This program is for parents, and all who may need a little relief from the struggles of dealing with disability issues. Peter Condon, WI FACETS 20.Working with Young Children with Challenging Behaviors - Focus on Elementary Age Enhance your knowledge, and discuss strategies to address a variety of challenging behaviors children display. Focus is on children in elementary school. Don Rosin, Great Lakes Inter-Tribal Council, Inc., Native American Family Empowerment Center 21. Tools, Tips, and Tales from the Trenches Learn from parent advocates from across Wisconsin who are at the forefront of school reform in their local school districts. Includes a presentation and panel discussion. Dawn Wians, Coordinator, Building Connections in Special Education; Gail Kolvenbach, WI FACETS |
| Session D - Friday April 29, 2002 - 8:30 am - 10:00 am |
24. Parents As Partners Learn more about Parents as Partners, a successful model of parent-professional collaboration which promotes positive communication and builds educational partnerships that benefit families of children with special needs. Debbie Brennan; Danette Tellijohn 25. DVR & SSI - A Winning Combination Bob Monahan, Area Work Incentives Coord., SSA-Area 2, WI; Charlene Dwyer, Department of Workforce Development – DVR Admin. 26. There's Always Hope The feelings of hopelessness are overwhelming for parents. We will explore how to focus on putting your “exceptional” child/parent relationship first. Terri Enters; Kathy Langer 27. Ready . . . Set . . . Go - Educational Considerations for Young Children with Disabilities 6. This presentation, developed by the collaborative efforts of state parent projects (WSPEI and WI FACETS), Birth to 3, Department of Public Instruction and the Preschool Options Project, discusses the transition process from Birth to 3 to services available to children from age 3-5 in their community. Mary Joslin,CESA 10; Kara Van Vooren, WI FACETS; Lauri Malnory, Eau Claire Area School District and WSPEI; Sue Albert, Madison Metropolitan School District 28. Legislative Advocacy 101 - or Making Your Voice Heard Tom will discuss strategies with your local and state elective officials on issues important to you. Tom Hlavacek, Milwaukee Office Director, Wisconsin Coalition for Advocacy 29.Working with Young Children with Challenging Behaviors - Focus on the Middle School and High School Ages Enhance your knowledge and discuss strategies to address a variety of challenging behaviors older children display. Focus on children in middle school or high school. Don Rosin, Great Lakes Inter-Tribal Council, Inc., Native American Family Empowerment Center 30. The Medicaid/BadgerCare Budget This session will explain the state budget process and Medicaid budget projections and identify issues regarding the Medicaid/BadgerCare budget. Marge Hannon Pifer, Health Care Financing Supervisor; Michelle Pink, Medicaid Budget and Policy Analyst |
| Session E - Friday April 29, 2002 -10:30 am - 12:00 noon |
31. Parents are from Mars, Schools are From Venus: What Does Parent Involvement Mean to You? No Child Left Behind included a mandatory provision for parent involvement in education at all grade levels. Do you know what the 6 types of parent involvement are? What does parent involvement mean in special education? Cynthia DiCamelli, Wisconsin PTA; Mary Sobczak, WI FACETS 32. DVR & Schools Working Together with Youth & Families The Wis. Dept. of Public Instruction and the Wis. Div. of Vocational Rehabilitation 2004 interagency agreement is a model for transition. This workshop explains the model with examples appropriate for parents, teachers, and others who assist students preparing for post-school vocational goals. Steve Gilles, Transition Consultant , Wisconsin DPI, Stephanie Perla, Voc Rehab Director, DVR 33. Parents as Advocates: Fighting for your Child's Health Care Benefits Parents as Advocates will provide the participant with the tools necessary to best link with the systems of health care coverage that support your child. Issues surrounding public and private health insurance will be explored. Barbara Katz and Bobby Peterson, ABC for Health, Inc. 34. A Gentle Journey: Living Well through Honoring Values, Beliefs, and Comfort by Advance Planning for Future Health Care Choices The focus of the program is to develop the participant’s understanding of the options available and the process of Advance Planning Health Care Directive. Katherine Krahling, Waukesha County CSHCN, Executive Director, Caregiver’s Crossing, Inc. 35. Birth to 3 & Early Childhood Special Education Eligibility A Birth to 3 Provider and an Early Childhood Consultant will collaboratively present the qualifying criteria for the two respective programs. Our goal is for participants to understand the purpose of each program, and why they are different in their approaches. Rene Forsythe, Early Interventionist & SIG Transition Project Coordinator, CESA #5; Marianne Smith, CESA #10 36. Sticks and Stones Can Break Your Bones, and Names will ALWAYS Hurt You! Children with disabilities often are targets of bullying and they may be the least well prepared to respond or even report it. Bullying is not a ‘rite of passage’ nor should it be an ‘expected part of growing up.’ This presentation will discuss the facts and myths of bullying, the teaching of an anti-bullying curriculum and how children can reduce the likelihood of becoming bullying victims. Glenis Benson, Ph.D. 37.Self Acceptance from Within to "Get-It-Together" with Ease Self Acceptance Training is the “experience of one’s Self at every moment without the inhibition of self-evaluation, self-criticism or self-judgment.” Pamela O'Brien, All Possibilities, LLC |
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Last Updated 3/21/2005 |